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A Little Holiday Help

Friday, December 2nd, 2011

The holidays should be a time for joy, celebration, family and fun, but for some, the holidays can be a very stressful time of the year. Although everyone dreams of giving their children a magical morning filled with toys and games from Santa and a family meal fit for a king, those dream can be financially straining. PHS wants to help families in need locate the resources they need to help those dream become a reality this holiday season. PHS Medical Social Worker, Monica Handlos has compiled a list of local resources that are available to help provide toys and holiday meals for families in need.

Please pass this information on to anyone you know that could use an extra hand this season.

***If this list doesn’t cover your area please call United Way First Call for Help at 651-291-0211 or 1-800-543-7709 and ask them for agencies that are helping with Holiday Assistance. They will ask for your zip code and give you a list of local agencies that might be able to help you out.

General Programs:

Additional Meal Resources:

Tags: christmas resources, emergency foodshelf network, food basket, food shelf, free food, holiday resources, meal assistance, meals, pediatric home service, PHS, salvation army, thrive, toys for tots, united way, xmas
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Thanksgiving meal assistance in metro MN

Friday, November 4th, 2011

We’re coming up on an especially needy time of year for families, yet many metro Minnesota area organizations, churches, and food shelves ensure that every family can give thanks over a traditional Thanksgiving meal.

Last year PHS had a list of 5 food shelves that families could contact for assistance, this year PHS’s Medical Social Worker, Monica Handlos has found even more resources to help families in need for the holiday season. Monica recommends contacting the United Way First Call for Help at 651-291-0211 if the list below doesn’t cover your area. Ask them for agencies or food shelves that are helping with Thanksgiving Meals or Baskets. They will ask for your zip code and give you a list of local agencies that might be able to help you out.

Review these options and see which ones make the most sense for you. You may also call Monica at 651-789-9215 for help in applying to the programs if you’re having trouble.

Most meals include a roasted turkey and dressing (already cooked) along with raw potatoes for you to cook, canned vegetables, canned cranberries, rolls, butter, milk and pie.

Holiday Meals:

Thanksgiving Meals on Wheels
651.699.5404
They deliver Thanksgiving meals to families living within 45 miles of St. Paul. Call between 8:30-4pm to set up a delivery. They will need your address, zip code, and number of people who will be eating on Thanksgiving. Meals will be delivered between 8-11am on Thanksgiving and someone needs to be at home in order to sign for the delivery. The meal includes a roasted turkey and dressing (already cooked) along with raw potatoes, canned vegetables, canned cranberries, rolls, butter, milk, and pie for dessert.
Cherokee Tavern
886 Smith Ave S, West St. Paul, MN 55118
Free Thanksgiving meal served at Noon and 1:30pm.
Transportation is available to those in need and meals may be delivered if needed. For tickets please call Neighbors, Inc 651.455.1508; St. Francis de Sales 651.228.1169, Neighborhood House 651.789.2564-Spanish or 651.789.2541-Hmong
Bierstube
651.773.5854
2670 E County Rd E, White Bear Lake, MN 55110 or 7121 10th St Oakdale, MN 55128.
Free Thanksgiving meal provided to anyone in need between 12-2:30pm.
Pepitos Mexican Restaurant
612.827.2928
4820 Chicago Ave, Minneapolis, MN 55417
Free Thanksgiving meal provided beginning at 10am.
Gethsemane Lutheran Church
952.935.1753
715 Minnetonka Mills Rd, Hopkins, MN 55343
Free Thanksgiving meal beginning at 1pm in Gethsemane Lutheran Fellowship Hall. Please make a reservation by November 23rd.
Faith Lutheran Church of Coon Rapids
763.354.7826
11115 Hanson Blvd, NW, Coon Rapids, MN 55433
Free Thanksgiving Meal. Serves Anoka County. Please call church for details.

Food Baskets:

Christian Cupboard
651.738.2338
7380 Afton Road, Woodbury, MN 55125
Need to register in person on November 15th between 9-Noon. Bring id and proof of address such as a current utility bill. Children will also need a proof of ID such as a medical or social security card.
Area served includes, Woodbury, Maplewood south of I-94, Landfall, Oakdale.
Family Pathways
651.464.2098
935 Lake St. S, Forest Lake, MN 55025
Holiday meal supplies are provided. Please call for an appointment. Will need to complete an application, show proof of address, and ID. Service area: Forest Lake, Scandia, Wyoming, and surrounding area.
North Suburban Emergency Assistance Response (NEAR)
763.533.2836
4803 Welcome Ave N, Crystal, MN 55429
Thanksgiving Baskets available to those eligible. Please call for an appointment Monday-Friday 9am-4:30pm.
Service area: New Hope, Crystal, Robbinsdale between 42nd Ave N and 62nd Ave N.

Tags: caring for kids with serious illnesses, help for families with sick kids, help for parents caring for seriously ill kids, medically fragile kids, metro MN food assistance program, Minnesota food shelves, MN food shelf assistance, MN food shelf programs, MN food shelves, support for families with sick kids, thanksgiving meal assistance
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Traveling With Your Medically-Fragile Child

Friday, June 10th, 2011

“Anything that a normal healthy child can do so can she, there’s just a little more baggage. I just want people to know that it is possible. Your kids, they deserve the best. It just becomes your new normal.”
PHS mom Heather on traveling and excursions with their medically-fragile daughter, Emerson.

Tana, respiratory therapy, RT, infusion therapy, pediatric home service, travel medically fragile, supplies, equipment

PHS patient, Tana, on an airplane ventilator and all, on her way to Mexico!

PHS wants families to know that we are here to help and to support you in every way we can and that includes helping you prepare to travel with your medically-fragile child. See below for the various ways PHS can help you when preparing to travel to grandmas for the weekend or for that big airplane ride you’ve all been waiting to take!

Supplies

You can ask PHS to ship disposable supplies to travel destinations in the United States (except Hawaii and Alaska). Alternatively, you may choose to carry disposable supplies with you or ship them yourself.
Notify PHS at least 5 business days before your arrival date to allow enough shipping time.

Equipment

Make sure any equipment you ship arrives safely by packing it in a correctly sized box. Call us if you need a shipping box. We strongly recommend that you always bring or ship backup equipment.
You can also arrange before leaving home to have backup equipment available at your destination. Call a hospital in your travel area and ask for the names of local agencies that might have equipment or supplies that meet your child’s needs. Be sure to say that you want agencies that serve children because most home care and medical equipment providers serve only adults.

Air Travel

Call the airline about your child’s medical needs before buying a plane ticket. Each airline has separate rules about the type of medical support it allows during a flight. Most major airlines will accommodate your child’s medical equipment needs, whereas some charter airlines will not.
An airline may require a doctor’s order before it allows medical support during a flight.
Make sure the airport terminal can meet your child’s needs while you wait to board the plane or after you arrive at your destination.

Summer Holiday Shipping Schedule
PHS is CLOSED on the following Mondays in observance of holidays:
July 4 and September 5

On-call clinicians will be available for emergency therapy and equipment troubleshooting needs.
Order supplies in advance so you don’t run out! Shipping service during the long weekends may be delayed.

Do you have any travel tips, photos or experiences from traveling with your medically-fragile child that you’d like to share with other families? We’d love to hear about all your fun!

Tags: airplane, caring for kids with serious illnesses, caring for kids with serious illnesses on vacation, help for families with sick kids, medically fragile kids, medically-fragile, portable home care supplies, travel, travel with medically fragile kids
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How to unclog feeding tubes with Clog Zapper

Thursday, April 28th, 2011

If your child uses a feeding tube, you know it helps conveniently provide necessary nutrition and sometimes medications. But not when it’s clogged. Clogged feeding tubes interrupt important feedings and can cause frustration and discomfort. To keep lines clear, PHS and many of our families use the Clog Zapper .

Clog Zapper is convenient and easy to use. In this video, PHS Dietician Janelle Peterson, RD, LD, CNSD, takes you step-by-step through using the product to keep your child on track and avoid replacing feeding tubes.

Thanks, Janelle!

Find other helpful video on the PHS YouTube channel.

Have you used Clog Zapper or other tube clog production? Any tips to share? We’d love to hear about it.

Tags: caring for kids with serious illnesses, caring for kids with serious illnesses at home, clog zapper, entereal feeding tube, feeding tube, feeding tubes, help for families with sick kids, help for parents caring for seriously ill kids, home medical equipment, home medical equipment and supplies, infection prevention, medically fragile kids and infection prevention, PHS, unclogging feeding tubes
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Measles is on the Rise. Vaccination clinic this weekend in Minneapolis.

Friday, March 25th, 2011

Several cases of measles, a highly contagious respiratory disease caused by a virus, have been reported in the metro area. Measles is a viral infection that causes fever, rash, cough, conjunctivitis and cold/congestion symptoms. It is highly contagious when non-immune individuals are exposed to infected individuals.

Measles can be prevented by being vaccinated with MMR (measles, mumps, and rubella) vaccine which is recommended at 12 months of age.

Individuals born before 1957 are generally considered immune from the old style vaccination. Individuals born in or after 1957 should have had at least one MMR (measles, mumps rubella) vaccine and would be considered immune.

High risk individuals for acquiring the disease would be those exposed to a measles infected individual but are immunocompromised or have not been vaccinated against measles and children < 1 year of age.

Check with your health care provider to make sure you and your child have been vaccinated. If you are uninsured, you can be vaccinated in a public health immunization clinic. For information on upcoming clinics, see below.

For more on measles please download general information fliers in either Somali, Spanish or English from ECHO Minnesota.

ECHO Minnesota has provided information on an upcoming vaccine clinic for measles this weekend. ECHO Minnesota is a leader in multi-language health, safety, civic engagement and emergency readiness communication, bridges the gap for immigrants and refugees in Minnesota.

MMR Vaccine Clinics March 27

Children’s Hospitals and Clinics will hold an MMR clinic on Sunday, March 27, 1-4 p.m., at its Minneapolis Specialty Center, 3rd Floor, 2530 Chicago Ave. South.

Families with or without insurance may attend these clinics; those with insurance should bring their insurance card, those without insurance will not be charged for their vaccinations.

More details will be posted on the MDH website (www.health.state.mn.us) and at www.hennepin.us/vaccines

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Tips on reusing and rotating trach tubes

Friday, March 25th, 2011

Trach tubes can be safely reprocessed, providing patients with proper ventilation and secretion management, while maximizing resources and saving health care dollars.

How many times can a trach tube be reprocessed?

It varies. The number of times a trach tube can be reprocessed is different for each model, so be sure to carefully read and follow the manufacturer’s instructions included in every box. The reprocessing number is printed on these instructions, but it appears in small print and can be hard to find, so you may need to search for it. If you have any questions or trouble locating the number, PHS would be happy to help. Or you can contact the manufacturer directly

PHS recommends a two-trach rotation system

Here’s a system we think works well. We recommend that each family have two trach tubes in rotation at any given time. This makes tracking less confusing, and it ensures a new trach will always be in place and ready for use while the other one is removed and properly cleaned and prepared for the next rotation.

Tips for keeping track of your trachs

Use two distinctly different-colored permanent markers for tracking purposes. Use one color for the first trach in rotation and the second color for the second trach in rotation.

Using the first colored marker, make a chart on the inner flap of the trach box, with exactly the same number of boxes as the number of times the trach can be safely reprocessed. For example, if you can reprocess your trach fives times, you should have five empty boxes on your chart. Then in the first box, write the date you put in the first trach. Just before placing this first trach, put a corresponding dot, using the same color marker, on the inner hub of the trach, and then add another dot each time you process the trach.

So, for example, if you have a trach that can be reused five times, you would not discard it until you are about to place your sixth dot. This helps you track the number of times you’ve processed each trach and allows you to store the unused trach in its correct box when not in use.

Keeping the trach with its original box is important because it helps you keep the lot number with the trach. If there are any issues with the trach, PHS uses the lot number when talking with the manufacturer to find a resolution.

How often should your child’s trach be changed?

It varies, depending on your physician orders. But it always a good idea to keep notes if you are noticing changes in the trach when you remove it for processing. If the trach comes out clean and clear, you may want to talk with your physician about keeping the trach in longer between reprocessing times to extend the use of the trach. If the trach comes out with heavy secretions and blockages, you should talk to your PHS respiratory therapist and physician about how to thin the secretions and maybe changing out the trach more often to ensure proper ventilation until the secretions are under control again.

Cleaning and disinfecting your trach

The process differs for each trach, so again, carefully read and follow the manufacturer’s instructions for each model. If you have trouble finding the appropriate cleaning instructions in the material that came with the trach, contact your PHS respiratory therapist.

What works for you? What experiences have you had with trach tubes? Do you use colored markers or do you have a different system for trach rotation? We’d love to hear from you.

Rebecca Nielsen, RRT-NPS, LRT, is Directory of Ancillary Services at PHS.

Tags: changing a trach, changing a trach tube, changing trach tubes, reprocessing trach tubes, reprocessing trachs, reusing trach tubes, rotating trach tubes, trach rotation, trach tips
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Medicaid for children

Friday, March 4th, 2011

Are you eligible for health coverage—yet unable to afford the premiums?

In Minnesota, Medicaid and the Children’s Health Insurance Program, or CHIP, offer free or low-cost health coverage to children and families. Especially for families who have children with special medical needs, health insurance is a critical consideration. Fortunately, Minnesota has programs to help you and your children. PHS offers this information from the US Department of Labor on Medicaid and CHIP:

Minnesota uses funds from the state’s Medicaid, or CHIP, programs to help people who are eligible for employer-sponsored health coverage, but need assistance paying their health premiums.

Do I qualify?

If you or your dependent children are already enrolled in Medicaid or CHIP:

Visit the Medicaid office
- Click on Health Care, then Medical Assistance
Call 800-657-3739 or 651-431-2670

If you or your dependents are NOT currently enrolled in Medicaid or CHIP, learn how to apply or call 1-877-KIDS NOW.

Enrollment steps

Once Medicaid and CHIP determine that you and your dependents are eligible for premium assistance, you have 60 days to request coverage.

Your employer’s health plan must allow you to enroll in the plan – as long as you and your dependents are eligible, but not already enrolled in the employer’s plan. This is called a “special enrollment” opportunity.

Get more information on special enrollment or call 1-866-44-ENSA (3272)

Do you have experience with Medicaid or CHIP? Any tips to share? We’d appreciate your insights.

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Help for the holidays: Twin Cities assistance programs give toys, food

Wednesday, December 8th, 2010

But time is running short, so call today.

Many families need a little help during the holiday season—and several metro MN programs provide gifts and food to make sure the season is merry and bright for everyone.

PHS recommends these programs for Minnesota families who need assistance with toys, gifts, clothing, and food for a holiday meal. You can also call PHS Medical Social Worker Monica Handlos at 651-789-9215 for help in applying to the programs or to find out more about what may still be available to you.

General programs

Toys for Tots

From October through December, TOT collects new toys for children whose parents cannot afford Christmas gifts.

To register: go to http://Minneapolis-mn.toysfortots.org/local-coordinator-sites/lco-sites/default.asp and click on the request toys tab. A list of local nonprofit distribution agencies will be available after November 23. Contact an agency close to you and try to make your request by December 10.

Salvation Army

The Salvation Army provides food and toy assistance.

To register for Toy Shop: go online at http://thesalarmy.org/toyshop/ or call 651-746-3595 Monday-Friday, 9 a.m-4 p.m. The 2010 Toy Shop is open until December 9.

Toy Shop is a collaboration of churches and agencies working together to register families for Christmas resources. When you complete the form, you will be assigned to an agency that will serve you and instruct you on how to pick up toys.
Who is eligible:
Residents of the 10-county metro area (Minnesota)
With a child or children up to age 14
With an active email address (for online registration)
With a home address where you receive mail
Those not registered for Christmas assistance anywhere else
Those able to show proof of address and ID for every child when you pick up your toys

To register for Holiday Food Baskets: contact your Salvation Army Social Service Office. You’ll find the number at http://www.thesalarmy.org/loc/ssoffices.htm.

Dakota County

Neighbors, Inc. Holiday Program provides the ingredients for a holiday meal, as well as toys and clothing for children.

Who is eligible: Residents of Inver Grove Heights, Lilydale, Mendota Heights, South St. Paul, Sunfish Lake, or West St. Paul.

To apply: Applications are taken in person from November 3 through Monday, December 15, between 8:30 to 11:30 a.m. and 1:15 to 4 p.m. (Application deadline on 12/15 ends at noon.) To receive an application, go to 218 13^th Ave. South, South St. Paul, second floor, and bring:

Picture identification
Current utility bill, from Xcel, Qwest, Comcast, etc. for November or December; name on bill must match picture ID
Bring a birth certificate for each child school age or younger, or proof of child from Dakota County, or a letter from the school they attend listing your name and child’s name
Proof of income for the past 30 days for every adult in the household (pay stubs, bank statement or proof from Dakota County—this includes child support payment and any Social Security income for children.

To learn more, call the Information Hotline at 651-306-2149 (for Spanish call 651-306-2153).

Hennepin County

Community Emergency Assistance Program, Inc. (CEAP) provides food baskets for families and parents can choose two gifts and a stocking stuffer for each of their children.

Who is eligible: Residents of Brooklyn Center, Brooklyn Park, or East Champlin with children in the household aged 18 or younger.

To register: leave a message on the Holiday Line at 763-450-3670 to make an appointment. The deadline to call in for an appointment is December 8.

PRISM Holiday Shoppe provides toys for children. Parents may come and choose gifts about two weeks before the holidays. They also receive wrapping and other supplies as available. PRISM receives toys from church partners, local businesses and individuals and Toys for Tots.

Who is eligible: Residents of Golden Valley, South of 42^nd Avenue in Crystal, New Hope, or Robbinsdale, East of 494 in Plymouth.

To sign up: you need to be seen by a PRISM caseworker. Call 763-529-1350 to make an appointment. Guidelines:

Sign up is in person at PRISM after September 1
Bring proof of address and ID cards for each child
You will be issued a map to the distribution site and a specific appointment time

Toy distribution: families come to the site at the appointed time and sign in with a PRISM staff person. A Santa’s Helper takes the family through the room helping them choose gifts (number and types vary depending on donations).

Jackson County

Lakefield Food Assistance provides holiday food baskets and Christmas gift baskets.

Pre-register and apply at Jackson County Department of Human Services, Jackson County Community Health, or Lakefield Food Shelf. Call 507-662-5718 for more information. You must be a resident of the Lakefield area to be eligible for this program.

Still need help?

If you aren’t eligible for any of the resources listed here or miss the deadlines, call United Way First Call for Help at 651-291-0211 or 1-800-543-7709 and ask for agencies helping with holiday assistance. They will ask for your zip code and give you local agencies that may be able to help you.

How are you celebrating the holidays this year? Do you set a budget or have any tips on how to manage over holidays? Is there a program that helped you out in a time of need? We’d love to hear from you.

Monica Handlos, LGSW, is the Medical Social Worker at PHS. Please feel free to contact her with any questions on the resources listed above.

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Thanksgiving activities for kids

Wednesday, November 24th, 2010

To bring more meaning to this holiday, PHS recommends these Thanksgiving activities for kids, including kid’s crafts and cooking with kids.

For most families, Thanksgiving is a time to celebrate families, America’s beginnings and a reminder to be thankful. Help children appreciate the holiday for more than turkey, football, and a break from school. Make this Thanksgiving memorable for children of all ages and stages with these Thanksgiving activities for kids:

Thanksgiving hats photo by sgclarck

Learn about the first Thanksgiving, other traditions

Kids will love hearing that the colonists’ and Indians’ feast menu included deer and duck instead of turkey and no pies (the pilgrims’ sugar supplies were depleted by then). With a little guidance from an older child or adult, children can prepare a little Thanksgiving play to perform.

Some ideas and resources for heartwarming ways to learn about this holiday:

Before dinner, have everyone write down someone or something for which they’re thankful, and have children read all the slips of paper out loud. They’ll be delighted to guess everyone’s submissions.

You can even tune in to the first Thanksgiving Day football game broadcast, circa 1934 in Detroit (the Lions lost to Chicago)

Kevin and mom Susan make a smoothie in the kitchen

Get cooking

Get kids in the kitchen to help with preparations, cooking, baking, setting the table, and (yes!) cleaning up. There’s a task for every age, ability and interest, from folding napkins to rolling out pie dough to “taste testing” the mashed potatoes. You’ll love seeing kids’ pride in helping cook.

See more kids Thanksgiving cooking ideas

Thanksgiving crafts for kids

Make the most of the long weekend by creating some Thanksgiving crafts with your kids. Beforehand, have them create place cards for your Thanksgiving table, a “thankful” tree where people can jot down things for which they’re thankful and hang the little papers like ornaments or clever placemats.

Find more Thanksgiving crafts for kids

How do you make Thanksgiving meaningful? What works for you and your family? Do you have tips and resources, based on your holiday experiences? We’d love to hear about it, and we especially appreciate photos of your crafts, activities and celebrations.

PHS is not liable for the content of any of the resources listed, nor do we endorse any commercial product or service mentioned or suggested.

Tags: caring for kids with serious illnesses, cooking with kids, family thanksgiving activities, family thanksgiving crafts, help for families with sick kids, help for parents caring for seriously ill kids, holidays with medically fragile kids, kids crafts, support for families with sick kids, thanksgiving activities for kids, thanksgiving crafts for kids
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Thanksgiving Dinner assistance: Five metro MN area food shelf programs

Friday, November 12th, 2010

It’s an especially needy time of year for families, yet several metro Minnesota area food shelves ensure that every family can give thanks over a traditional Thanksgiving meal.

PHS recommends these programs for Minnesotans who need assistance with food programs. Review these options and see which ones make the most sense for you. You may also call PHS Medical Social Worker Monica Handlos at 651-789-9215 for help in applying to the programs. Most meals include a roasted turkey and dressing (already cooked) along with raw potatoes for you to cook, canned vegetables, canned cranberries, rolls, butter, milk and pie.

Find your nearest area and how to register for your meal here. All offer Thanksgiving Dinner meals this year:

St. Paul: Church of Acts, 862 White Bear Avenue | 651-771-5077
Register in person on November 13from noon – 3 p.m. Bring a photo ID and current utility bill or other proof of address.
Woodbury, Landfall, Oakdale, Lake Elmo, Maplewood (south of I-94): Christian Cupboard, 7380 Afton Road
Register in person on November 20 from 9 a.m. – noon. Bring a photo ID and current utility bill or other proof of address. Children will also need a proof of ID such as a medical or social security card.
Areas within 45 miles of St.Paul: Thanksgiving Meals on Wheels* | 651-699-5404
Delivers Thanksgiving Meals to families living within 45 miles of St. Paul. Call before November 22, between 8:30 a.m. – 4 p.m. to set up a delivery. They will need your address, zip code, and number of people you’ll serve for Thanksgiving. Meals will be delivered between 8 – 11 a.m. on Thanksgiving Day. Someone must be home to sign for the delivery.
Circle Pines, Lino Lakes, eastern Blaine, Centerville, Lexington: Centennial Food Shelf | 763-784-1971
Call to register on Monday or Thursday between 4 – 6 p.m. Registration closes November 18. Bring a photo ID and current utility bill or other proof of address.
West St.Paul: Caspers’ Cherokee Sirloin Room: 866 Smith Ave South
Opens its doors to those in need and serves a complete Thanksgiving Day dinner at no charge. Two meals are served, at noon and 1:30 p.m. Transportation is available to those in need and meals may be delivered. For tickets, call one of these sources:
St. Matthew 651-224-9793
Our Lady of Guadalupe (Spanish) 651-228-0506
Neighbors, Inc 651-455-1508
St. Francis de Sales 651-228-1169
Food Shelf 651-789-3630
St. Joseph 651-457-2781, ext. 7419;
St. Michael 651-457-2334, ext. 2
Neighborhood House 651-789-2564 (Spanish) or 651-789-2541 (Hmong)

If one of these places does not cover your area, call the United Way First Call for Help at 651-291-0211. They will ask for your zip code and give you agencies in your area that may be able to help you.

*No connection to Meals on Wheels

How do you prepare for Thanksgiving? What works for you and your family’s budget? Do Any program that helped you cover food bills in a time of need?

We are thankful for you, and we’d love to hear from you.

Monica Handlos, LGSW is the Medical Social Worker at PHS. Please feel free to contact her with any questions on the resources listed above.

Tags: caring for kids with serious illnesses, help for families with sick kids, help for parents caring for seriously ill kids, medically fragile kids, metro MN food assistance program, Minnesota food shelves, MN food shelf assistance, MN food shelf programs, MN food shelves, support for families with sick kids
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Phone: 651-642-1825 Toll Free: 800-225-7477 | Fax: 651-638-0680 | TTY: 651-638-0683

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