Archive for the ‘Independent living with in-home health care’ Category

A PHS family’s story: In-home health care service

Friday, December 10th, 2010

PHS is proud to provide in-home health care service to patients and their families, and always eager to improve services and expand product offerings to better fit their needs.

We were happily surprised when a patient’s father shared his story of the high level of customer service he and his family received from PHS.

“PHS, as an organization, is doing the right things.”

That’s David, parent of former PHS patient Bryan. Last month, just weeks after Bryan passed away at age 15, David graciously shared his family’s story with PHS staff members. See David’s full presentation below or on the PHS YouTube Channel. We appreciate David’s perspective and we are especially grateful to have cared for Bryan and his family.


PHS listens

PHS acutely listens to patients, caregivers and healthcare professionals. This feedback helps us best determine changes, additions and enhancements to services and products. Check out three recent changes we made based on customer input:

  • Extended hours of operation
  • New services based on patients’ families needs
  • More usable education materials

Surveys count

PHS patients and families graciously complete patient satisfaction surveys to provide valuable input.

Of course, if you have a need, idea or suggestion, please share it with your PHS caregiver. We’re eager to improve our care.

The business of customer service

“PHS does not sell ventilators. PHS takes care of kids.”

We couldn’t have said it better, David. Thank you.

Do you have a customer service experience to share (with PHS or any other organization)? What works for you and your family? Do you have tips to share? Anything you’ve suggested that was successfully implemented?

We’d love to hear from you.

PHS’s Top 11 Twin Cities’ kid-friendly fall activities

Friday, October 29th, 2010

What are your kids into these days? Chances are, there’s a place to indulge those interests right nearby that’s accessible and affordable. There’s still plenty of time to enjoy some great kid-friendly fall activities with your family around the Twin Cities area.

You can always ask your child’s PHS caregivers what types of experiences may best for your kid and your family. Here’s our Top 11  (we couldn’t pick just 10!) list of kid-friendly activities in the Twin Cities this fall, in no particular order:

carving pumpkins1. Into arts? Decorate pumpkins

Beyond carving kits, consider simply using paints (acrylics work best) so even the little ones can show their artsy side—and these designs last longer. Dress up pumpkins with masks, add ribbons and yarn for “hair,” which is also good for those with limited fine motor skills.


2.
Sports fanatic? Get ready for some football

Live game action is much different than watching your favorite teams on TV. Check around for youth football games or high school games. The state tournament is in mid-November and games are in the cozy Mall of America field: Ticket info here. If you have kids with more stamina, consider a home Vikings football game. Go early to enjoy the sights, sounds and flavors of the Plaza area. In case of an emergency at Mall of America Stadium you can locate first aid in section 116 or by asking any concession stand employee or security guard to call for you.

3. Monkeys? Animal lovers? Zoo!

HallZooween at the Minnesota Zoo features lots of activities, plus a new baby dolphin, new lynx kittens and the new Africa exhibit. Bring warm jackets for the MN Trail, Russia’s Grizzly Coast, Family Farm and play areas, which have climbing, sliding and swinging activities for every age and ability level. Or, plan to stay indoors at Discovery Bay, the Tropics Trail and an IMAX movie.

Como Zoo is a classic urban zoo, with a new Polar Bear exhibit. It’s best for younger kids or shorter outings. Don’t miss a ride (or two) on the legendary carousel, which also accommodates wheelchairs.

4. Competitive? Bowling brings out the bestbowling

Anyone and everyone can bowl, keep score and try on the cool shoes! Check this lists of MN bowling alleys. Look for coupons, family bowling times and special events like laser light bowling times to fit your family’s needs. Don’t forget to put the gutter guards up for less frustration.

5. Aspiring actor or actress? Settle in for a movie

Go for a matinee or look for theaters that offer family-friendly showings of not-so-new but still wonderful films. Check on ratings, reviews and handicap accessibility before you go. Find a theater and show times near you here.

6. Curious explorer? Build, experiment and learn

The Minnesota Children’s Museum offers special Halloween activities and ever-changing displays with an emphasis on hands-on experiments. Don’t miss the rooftop. See what’s on tap here.

7. Proud Minnesotan? See where Honeycrisp apples come from

Several orchards around the metro area offer apple-tasting, apple-picking, hayrides, crafts and games. Some spots also have pumpkins, gourd making, maple syrup and maple syruping demonstrations. Just a few options: On the west side, see how cider is made at Minnetonka Orchards. East of St. Paul, check out Afton Apple. South, don’t miss the corn maze at Applewood Orchard. On the north side, there’s Applecrest Orchards at (651) 426-7388. See the full listing of area apple orchards here.

8. Culinary inclined? Get in the kitchen

While you’re baking those apples into pies and crisps, you can also bake and decorate cookies into shapes of leaves, Halloween- and Thanksgiving-themed treats. Find great sugar cookie recipes, including gluten-free options here.

9. Sporty? MN Wild hockey game, MN Timberwolves basketball game

Both teams offer family-friendly ticket and concessions packs, plus group ticket options for less seats required than you may think. Get a group together and save. See the Wild options and the Timberwolves ticket info.

10. Outdoorsy? Go for a walk in the woods

You never know what you’ll discover outdoors, and the fresh air is good for all of us. See a list of nature trails near you. Be sure to look for a paved path if you have a child in a wheelchair.

11. Bookworm? Story time

Visit the Wild Rumpus bookstore, Minneapolis, with its child-size entrance door, resident cats and “tail time.” Enjoy puppet shows, Friday night pajama time and other kid club action at The Valley Bookseller in Stillwater. In St. Paul, enter the kid-friendly Red Balloon Bookshop.

As always, infection prevention is a top priority for PHS, if you are venturing out to public areas be sure to take precautions with proper hand hygiene or just choose an activity you can do in the comfort of your own home.

Have any other ideas for families and friends to enjoy? Share ideas here or photos of your kids out enjoying fall activities!

We provide these resources as a convenience and for informational purposes only. Always consult your child’s doctor regarding your child’s care plan.

PHS is not liable for the content of any of the resources listed nor do we endorse any commercial product or service mentioned or suggested.

Hassle-free family visit to the MN State Fair

Thursday, August 19th, 2010

All-you-can-drink milk, $1. Scavenger hunts. Tractor rides. Watching a lamb come into the world. Everything to eat on a stick.

The great Minnesota get-together, the Minnesota State Fair, runs August 26 – September 6 this year. Planning to spend a day there can be daunting for any family, especially with a medically-fragile child who has special needs.

Yet it’s also a day you’ll all treasure. To focus on the fun of the day, do as much as you can before you get in the gates with these preparation tips:

1. Study up on accessibility

The Fair has parking, drop-off and pick-up and other arrangements for visitors with special needs. The Fair’s accessibility guide is here, where you’ll find information on:

-      Wheelchairs to rent

-      Wheelchair recharging stations

-      Midway and Kidway ride guidance

-      Special entrances and seating for entertainment

-      ASL interpreter lineup

2. Know where to find the first aid buildings

The Fair has two medical aid stations to provide first aid. For serious illness of injuries call the police at 651-642-2280.

-      Medical Aid West: 8a.m. to 12:30a.m. 1834 Dan Patch Ave., across from Heritage Square

-      Medical Aid East: 8a.m. to 9p.m. 1424 Cosgrove St., north side of the 4-H Building

3. Plan ahead and save

-      Get discounted tickets at Cub Foods

-      Check out discount days and the Blue Ribbon Bargain Book

-      Consider using mass transit or carpool

-      If you’ll bring oxygen, prepare with tips from this PHS blog post

-      Talk with your PHS clinician for other guidance specific to your child and family

4. Preview

Talk with your kids about what they’d like to see and do. It’s challenging to do the entire MN State Fair in one day, so plan to focus on entertainment, exhibits and even food that most interests your kids—all under the clever guise of educating them about our great state!

5. Get an ID bracelet

Make your first stop (even before a pronto pup!) one of these locations for a free ID Bracelet:

-      Care & Assistance Center

-      Guest Services Office in the Visitors Plaza

-      Any information booth

Fairgrounds map

Your child’s bracelet will have his or her name, pertinent medical information and your contact info for the day. The information is stored inside the bracelet on the child’s arm and can only be accessed by cutting bracelet off arm, so you don’t have to worry about your child tampering with it.

6. Learn from other parents

The Education building is full of freebies from coloring pages to stickers and school supplies—plus a reusable bag to stash it all in.

This brave mom took her four kids to the MN State Fair and lived to blog about it. For instance, she found the best unisex/handicapped accessible restroom is in Eco Experience. Read all her tips.

Other moms offer advice on how to do the fair on a budget. Their tips can be found at http://twincities.momslikeme.com/members/JournalActions.aspx?g=152633&m=113301&grpcat=

7. Take photos and share the stories of your day with PHS

What’s your can’t miss stop at the MN State Fair? What works for you and your family? Do you have tips, based on your fair visits and other travels? Any places that have been especially accommodating?

We’d love to hear from you.

Special needs children and summer fun

Wednesday, July 28th, 2010

Who doesn’t love summer – especially if you’re a kid?

Meet some Pediatric Home Service children who don’t let complex medical conditions get in the way of safely enjoying all kinds of outdoor activities.

Pediatric Home Service patient Lucas playing summer league baseball

Lucas loves baseball and sees plenty of action on his Miracle League, team the Rays. Born with Down Syndrome, Hirschprung’s Disease and short bowel syndrome, Lucas is safe at home plate and safe at home with his family. PHS provides TPN, enteral feedings and other care, and he has been in the hospital for two brief stays in the last three years.

Pediatric Home Service patient Tana riding horseback on the beach with mom Jill

Although she is wheelchair-bound, Tana rides horseback, swims, tubes, and goes four-wheeling. Born with spina bifida, she was also diagnosed with a brain malformation, breathing disorder and MRSA. Expected to live to age five, Tana is almost 13 and enjoys a remarkable quality of life. She has even taken trips to Mexico and Disney World.

Pediatric Home Service patient Emily romping on playground equipment.

Emily can do almost everything other kids do, which is remarkable considering what she’s been though. Born with multiple congenital problems, including omphalocele and restrictive lung disease, she spent her first six months in a hospital and required 24-hour nursing care when she first came home from the hospital. Today, Emily uses some oxygen at night and will have surgeries on her back until she reaches skeletal maturity, but as you can see, that doesn’t slow her down one bit.

Here are a few more PHS “kids being kids.”

Kali slides down to mom

Emerson enjoys swinging outside

Mary Kate plays kitchen with mom

In these “mom and me” photos: Kali comes down the slide, Emerson enjoys swinging, and Mary Kate plays kitchen.

Do you have stories or photos to share?

Got any photos or stories you’d like to share about special needs kids having fun? Or any tips to share on what you and your family do to help your child with special needs venture out into the world and enjoy all it has to offer?

We’d love to hear from you.

Living in harmony with your kids’ special needs helpers at home

Wednesday, July 21st, 2010

When children with special medical needs come home from the hospital, they don’t come alone.

In addition to equipment and supplies, your kid’s special needs typically require the services of a variety of medical staff, including nurses who may be coming and going, or even in the home 24 hours a day, seven days a week.

That may take some getting used to.

Here are some tips from PHS staff and parents on how to live in harmony.

Communicate expectations
Make sure nurses understand what you expect of them. Decide on boundaries early on and keep communicating (things like where nurses should park their vehicles, can they use the refrigerator or should they bring lunch in a cooler, can they use kitchen appliances, or a separate bathroom). If something isn’t working, make changes so the family can maintain some level of privacy.

Take notes on kids special needs
Try using a “Communications Book.” You and the nurses write comments in the notebook throughout the day and are able to communicate through notes left in the book. As nurses change shifts, they read through the book to see how the child is doing that day or if anything has changed since they were last in the home. This keeps everybody on the same page.

Parents can also use the book to communicate an otherwise uncomfortable situation (for example, if one nurse is bad at cleaning up, the parent can write a note asking all nurses to please be better about cleaning up after themselves. That way, the parent doesn’t have to call out a specific person, but rather lets all nurses know they need to be careful and conscientious when they are in someone else’s home).

Make a list
Give the nurses a list of “need to know” situations, such if you wished to be awakened for fever or other signs or symptoms of an impending illness during the night or when to be called during the day.

Don’t let things fester
Address any concerns before they jeopardize your relationship. This is where a communications book comes in very handy, but if you are uncomfortable directly or indirectly confronting a nurse over a certain issue, talk to her/his supervisor.

Understand that personalities may clash. You may be able to overlook that, but if there is a nurse in your home you know will not work with your family, ask the nursing agency for a replacement.

Help the nurses help you
Don’t expect the nurses to know everything about your child. You are the expert; orient them as much as you can and let them be helpful to you.

How do you cope?
How does your family deal with having extra people in your home? Can you share any tips on how to maintain privacy and normalcy?

We’d love to hear from you.

Worried about taking a sick baby home from the hospital? Help is available.

Thursday, July 8th, 2010

Janita McLean is right. Taking a medically-fragile baby home from the hospital is scary. And overwhelming.

Taking any baby home from the hospital – even a healthy one – can be daunting. Lots of fears run through the minds of new parents: will I be able to keep the baby safe? How will I know when the baby is sick? How will I know what he or she needs? Can I do this?

For parents who take a child home with tubes and trachs and vents, those anxieties are magnified many times.

Like Janita, you may know how that feels. When Janita brought home her baby, Emily needed lots of equipment and required 24-hour-a-day care. “We weren’t familiar with how to take care of a child with a lot of medical needs, and having the trach and being on the ventilator – it was scary,” said Janita.

As you saw in the video, Emily was born with lots of problems, including a type of hernia known as omphalocele, underdeveloped lungs, scoliosis, and a small thorax. She spent her first six months in a Minneapolis hospital, a situation complicated by the fact that the family lives in northern Minnesota.

Pediatric homecare in northern Minnesota

The distance between the hospital and home was hard on the whole family, says Janita, including brother Taylor, who was five at the time and didn’t understand why mom was gone so much.

Going home was the best option for everyone. And when they were ready, there was lots of help available to help them make the transition.

Respiratory therapy at home

With education and help from health care professionals, including a PHS respiratory therapist who even spent the Fourth of July with the family making sure they were okay, Emily made a smooth transition home. And continued delivery of supplies to northern Minnesota hasn’t been a problem.

Help is available for families every step of the way, from paperwork to in-home services to responding to that emergency, middle-of-the-night call for medication.

Off the vent

Off the vent sooner than expected, Emily has made amazing progress. Her prognosis is good and her parents hope she will someday be able to stop using any oxygen.

“If you didn’t know her medical history, you would never imagine that she has gone through what she has,” says Janita. “She’s just a normal nine-year-old girl.”

Read more about Emily.

Share your stories

Do you have thoughts to share about taking a sick child home from the hospital? What was your experience like? Do you have a child with respiratory or congenital problems?

We’d love to hear from you.