Posts Tagged ‘home medical equipment and supplies’

PHS patient is Juvenile Arthritis March Honorary Chairperson

Friday, January 21st, 2011

PHS kids are amazing, including Charles Dias, who is this year’s Honorary Chairperson of the Juvenile Arthritis March (JAM). For the sixth consecutive year, Charles and his family will walk in JAM at the Mall of America. This year’s event is March 5. JAM helps support the 6,000 kids in Minnesota who have arthritis.

Charles Dias, JAM honoree, juvenile arthritis

Top JAM fundraiser
Charles, who just celebrated his ninth birthday, has consistently been JAM’s top fundraiser.
Again this year, PHS Nutrition Specialist Janelle Peterson, RD, LD, CNSD, and her own sons, plus PHS Marketing and Sales Program Coordinator Dana Akerson will walk with Charles’ team, and PHS will sponsor his team of “Charlie’s Angels.”

Janelle says: “JAM is an excellent event. It’s great for younger kids to see older children who also have juvenile arthritis thriving and walking. All the funds raised go to camp scholarships, research and other programs to help kids like Charles thrive.”

Charles story
“When he was two years old, Charles had unexplained fevers, rashes, and joint pain, and was in and out of consciousness. He spent 37 days in the hospital,” Charles’ mom, Louise, recalls. “He was finally diagnosed with systematic Juvenile Rheumatoid Arthritis, or JRA. We were shocked. Like other families, we had no idea a child could have arthritis.”

Charles is also orally averse, has Gastroesophageal Reflux Disease and several other conditions. PHS provides care for his feeding tube and other treatments.

For other children with juvenile arthritis, PHS IV Therapy nurses and Pharmacists work with physicians to manage pediatric arthritis. Care includes infusion steroid treatments, where a PHS nurse comes to the child’s home and provides therapy for the child while our on-site infusion pharmacy supplies steroid therapy.

charles dias, juvenile arthritis, jam“Through managed care, Charles is an active, energetic little boy. I love seeing him running around and playing. Helping care for him and joining his family for JAM has been pure joy,” Janelle says.

Click here for Charles and his family’s full story.

Do you participate in the JAM walk or know anyone who does? We’d love to hear your story. Feel like support Charles in his walk to fight against Juvenile Arthritis? Click here to support his team, Charlie’s Angels.

Top 5 reasons to use a PHS supply sheet

Friday, January 14th, 2011

“Where is that _____?!”

Not the frazzled question you want at 3 a.m.

PHS parents who diligently use a supply sheet for their children’s home health care medical equipment and supplies tell us it keeps them more organized and minimizes the risks of not having what they need, when they need it.

Lisa Jenson, RRT-NPS, LRT and PHS Customer Service Manager, agrees. “We encourage parents and caregivers to take just 5 minutes each day to at least look through their supply sheets. Of course we’re always here to help and take orders, yet using the supply sheet can help parents avoid hassles.”

Efficient, accurate, time-saving

Sample PHS supply sheet

Here are Lisa’s top five reasons to use a PHS supply sheet:

  1. Allows you to more efficiently organize your inventory, since the recommended “On Hand” is printed by each item.
  2. Saves you time in placing orders.
  3. Ensures accurate orders, since item numbers are listed for easy reference.
  4. Helps you identify the correct product by using the “Alternate Description.”
  5. Allows you to compare the “Order” to the “Delivered” items when you receive your products, so you know your order is complete.

Lisa also encourages parents to organize their home health care equipment and supplies. See advice from two PHS moms on how to best organize your supplies.

What works best in using your supply sheet? Do you have tips that can help other parents? Tips that can help PHS best help you? We’re always open to your ideas.

Lisa Jenson, RRT-NPS, LRT, Customer Service ManagerLisa Jenson, RRT-NPS, LRT, is Customer Service Manager at PHS. A staff member since 2003, she has held a variety of positions including staff mentor and field clinical educator for the Respiratory Department, subject matter expert for the Education Department, and primary clinician for assigned caseload of ventilator and trach-dependent children discharged to the home.

Protecting home medical equipment from summer storm power outages

Friday, August 6th, 2010

Lightning, thunder, dark skies and sirens during summer storms are upsetting. Yet power outages from thunderstorms and tornadoes can be very dangerous for kids who depend on home health care equipment.

When storms hit, children may become upset and clingy. You may become anxious at the possibility of losing power for your child’s medical equipment.

Be prepared to weather summer storms

Here are some steps you can take now to keep your children calm during storms, and to weather power outages without interrupting your child’s home health care equipment and its functions.

How to calm kids during summer storms

  • Stay near children during the storm, comforting them and getting their minds off the storm with games, stories, snacks, books and songs
  • Keep flashlights and batteries handy
  • Be attentive, but not glued to news sources about approaching weather; Avoid having children listen to or watch weather coverage nonstop
  • Tornado watch or warning? Go to a basement, windowless room or storm shelter with:
    • Essential medical equipment and supplies
    • Backup batteries
    • Flashlight and batteries
    • Battery-operated radio

Emergency backup plans for kids’ home care equipment

PHS helps families prepare emergency backup plans for their child’s overall care, which includes arrangements for generators, batteries or transport to a medical facility. Special considerations:

  • Respiratory needs: Many pieces of equipment require constant supply of electricity; Have alternative sources of power available such as extra, fully-charged batteries or a generator.
  • IV and pharmacy needs: Medicines often require refrigeration, so when power goes out, refrigerators stop running. Keep a cooler and ice on hand to keep medication properly chilled.
    • Curlin pumps: Use C-cell batteries to keep the pump running. Keep a supply of extra, fully-charged batteries on hand.
  • Food pump and formula needs: When a food pump is not in use, PHS recommends charging it so it is fully charged in case of a power outage. If power is lost and your food pump does not have a charged battery, you may use a gravity bag. If you are uncertain how to use a gravity bag, contact PHS.
    • Keep mixed formulas in a refrigerator when the power goes out until the refrigerator can no longer keep items cold. If the refrigerator cannot keep formula cold during a power outage, discard the formula and mix smaller amounts as needed.

How do you keep your children calm during storms? What’s your backup plan for medical equipment in case of a power outage? Do you have tips to prepare for severe weather and its impact?

We’d love to hear from you.