As 2014 wraps up, there are countless year-end lists popping up on the internet – everything from songs to selfies of the year. To review our year of Sharing Care, we thought it would be fun to make our own list and look at this year by the numbers – and we’re happy to have a list that holds a little more meaning to us (although we don’t mind reading the other lists either). (more…)
Posts Tagged ‘HopeKids’
Families who have children with medical complexities have access to support groups and other individuals who understand the road they’re on – but if families don’t know about these outstanding resources available to them, they can be left feeling isolated and under supported. By sharing the groups they’ve found along the way, a family’s road becomes a little smoother, more populated, and most importantly – supported.
To share the support groups & resources they’ve found along the way, we asked our followers on Facebook to share their favorites – and what a list they pulled together. Check out the organizations below, and visit the website listed to learn more or find out how you can be involved. (more…)
We have the honor of working alongside a number of amazing organizations dedicated to making the lives of families we serve easier and filled with support. In the world of pediatric cancer (and so many other diagnoses), one child’s fight affects the entire family – and there are resources in the Twin Cities and beyond ready to help parents, siblings, and patients along the journey. Are there other organizations or resources you have found that are helpful to the pediatric cancer community? Add to our list!
The organization we most recently learned about is Momcology, which was formed to bridge the isolation gap parents feel when their child is diagnosed with cancer. They are a community and facilitate relationships, growth, strength and understanding. The MN chapter of Momcology will be speaking at the APHON conference tomorrow, and PHS is thrilled to be attending with our new patient advocate. Are you the parent of a kiddo diagnosed with cancer? You can learn more about their organization and then join the Minnesota Momcology group on Facebook to connect with other parents.
Miracles of Mitch
Another organization helping families through the journey? Miracles of Mitch. They help organize dinners for families through Mitch Breaks on the Oncology floor at Children’s Hospital in Minneapolis, held an incredible New Years Eve celebration for the families (we could be found reading BINGO numbers) and put two MiracleKids triathlons together each summer. Hosted at Lake Nokomis and Lake Chanhassen, these races are for kids to “race for those who can’t” and are quickly growing in popularity. We’re counting the days to warmer weather and race time!
HopeKids believes that despite a serious medical diagnosis, kids should still have the opportunity to be kids and families should still have fun together. This organization provides events for these families, throughout the year like Wild Games, festivals, movies and more – all in a safe environment for kids who might be at risk with a lowered immune system. We love to be involved in their cause and events, from the Coleberry Golf Tournament to their 5k.
Chris and Heather, Lainey’s mom and dad, know the importance of good care. Their daughter, who was born with campomelic dysplasia (CD), a severe disorder that affects the development of the skeleton and reproductive system, just turned 6. However, 95 percent of children with CD don’t live to age two.
“We are lucky to live in Minnesota where we have excellent health care options and support like PHS. We view all the little things as milestones for Lainey. Every little bit she grows usually makes her a little more stable. We are fortunate she is still with us,” knows Chris.
Diagnosed with ‘failure to thrive’ and spending a number of weeks in the hospital after birth, Lainey started to really thrive when she got home. With Chris able to stop working and stay at home with her, she’s been able to live a full life surrounded by family and everyday activities while on a vent and CPAP/BiLevel.
“We do a lot of gardening. She loves to ride her trike. She’s pretty mobile: she has a walker and is really good at driving her power wheelchair around, getting in and out to play. She’s proficient in sign language, but when she got her voice, she was much more excited to talk and is vocalizing a lot now,” says Heather. Lainey is also in school five days a week, where she socializes and works with a team of physical and speech therapists.
When she isn’t at home or school, Lainey and her family love to attend HopeKids MN events such as Twins games, movies, and any other activities the organization might be hosting. HopeKids provides ongoing events, activities and a strong support community for families who have a child with a life-threatening medical condition. Through this organization, children and their families attend activities like Wild games, plays, rock climbing and much more — all while restoring excitement and hope back into their lives during what is likely a difficult time.
“We know we’ve beaten the odds so far,” say her parents. “It’s never far from our minds how quickly things could turn. That’s why we try to make the most of every day we have with her.”
So as they let her lead them on her journey, along with her sister Bani, they’re along for the ride and enjoying the adventure. It’s certain to be an amazing trip.
Did you know that for every ‘like’ received on our Facebook page throughout the month of June, PHS donated $1 to HopeKids Minnesota? Thanks to so many sharing our page and telling others about the donation, we were thrilled to donate $1,721 to HopeKids! If you don’t already know about this incredible organization, take a few minutes to visit their website and learn more. You may have seen us at a few of their events, highlighted on this blog.
We’re ready to keep the fun going with a summer photo contest! From August 8-20, you’ll see a tab available on our Facebook page to submit a photo of your kiddo enjoying summer. Whether they love to play in the pool, color pictures, go for a walk around the block or just enjoy the sunshine – we love to see how they’re spending these warm days.
How do you win the contest? Share your photo on the page with your friends, family, co-workers and encourage them to vote for your kiddo by ‘liking’ the picture. Anyone can vote for your submission! From the top five photos with the most votes, two winners will be randomly selected to each with a $100 Visa gift card. If you are a winner, you’ll be notified via Facebook.
Have a question about the contest? Feel free to leave it in the comments here or e-mail Katlyn at firstname.lastname@example.org. We’re looking forward to seeing your best photo!
Hope is a powerful medicine
Having a chronic illness not only impacts the child with the condition but also the entire family. HopeKids understands this challenge and strives to support these families with the message that hope can be the most powerful medicine of all. HopeKids events provides kids and parents with the opportunity to connect with others in similar situations. That invaluable connection helps families know they’re not alone.
HopeKids provides ongoing events & activities and a powerful, unique support community for children with cancer and other life-threatening medical conditions free of charge for the whole family. With events such as go-cart racing, football clinics with the University of Minnesota Gopher football team, private movie screenings, twins games and not to mention their annual HopeDay festival. When you’re at a HopeKids event you can be sure there will be no shortage of fun or hope for these children, their siblings and parents.
3rd Year at the Festival- still going strong
Sharing Care volunteers were lucky enough to participate for the 3rd year in a row in the 6th Annual HopeDay Festival, hosted by HopeKids! MN on September 9th. We had a blast with all the kids and their families, painting faces and fishing for prizes at the PHS go fish wall and attempting to make life size bubbles. Although the bubbles weren’t much of a success the kids still had fun playing in the sudsy pool anyway.
The festival marks the end of the HopeKids season and is the organization’s largest event of the year. This year’s festival attendance topped out at around 1,000 HopeKids families, approximately 400 student athletes and an additional 50 volunteers. The festival had fun events such as BMX bike show, blow up jumpers, dunk tank, pony rides, basketball, putt-putt golf and so much more. Thank you to HopeKids for letting Sharing Care be a part of the festivities. Check out our amateur face painting skills and all the fun we had at the PHS booth in the slideshow below.
Were any of you lucky readers at the event? If so, what was your favorite part?
In 2008, PHS created Sharing Care to extend our vision to include those in need in our local community. We designed the program to align our charitable giving with our mission to take care of the child and to provide PHS employees with the opportunity to donate time to programs and events in the community that are directly associated with serving medically-fragile and underprivileged children.
What’s for dinner? Breakfast! Cooking for kids at Ronald McDonald House
PHS Sharing Care volunteers joined the Cook for Kids program at Ronald McDonald House (RMDH) in Minneapolis on August 17. Many PHS families call RMDH home while their children are in the hospital, so we’re proud to be part of this event. Volunteers John, Miguel, Todd, Janelle, Dana, and Beth cooked ‘Breakfast for Dinner’ for families staying at RMDH. See even more photos from event on the PHS facebook page here.
Happy kids are hopeful kids
Sharing Care volunteers participated in the 5th Annual HopeDay Festival, hosted by HopeKids! MN on September 11. We had a blast with all the kids and their families painting faces and playing bean bag toss. This festival marks the end of this HopeKids season and is the organization’s largest event of the year.This year’s festival attendance topped out at around 1,000 HopeKids families, approximately 400 student athletes and an additional 50 volunteers. The festival had fun events such as BMX bike show, blow up jumpers, dunk tank, pony rides, basketball, putt-putt golf and so much more. Thank you to HopeKids for letting Sharing Care be a part of the festivities. See below for a video of the event.
PHS help’s restore the hope at Faith’s Lodge
After a devastating summer storm destroyed most of the 80 acre the grounds of Faith’s Lodge near Danbury, Wisconsin, they are picking up the pieces and moving forward. Faith’s Lodge provides a very needed respite and recovery for many PHS families living with a chronically ill child, or those dealing with the loss of a child, so PHS and many other organizations and families helped “Restore the Hope” with a tree-planting open house on September 17. Sharing Care purchased trees and six volunteers took the day to head over to Faith’s Lodge to get them in the ground. The day also included a pancake breakfast and opening ceremonies with founders Mark and Susan Lacek. We’re eager to see the trees thrive at Faith’s Lodge. See even more photos from event on the PHS facebook page here.
We are always looking to support new fabulous organization that support medically-fragile children, so if you have any ideas, simply submit a comment here. We’d love to hear from you!
Philanthropy has been part of the PHS culture since we opened our doors for business in 1990. Since formalizing our giving and volunteering by introducing the Sharing Care program, PHS has formed several valuable partnerships that serve as fantastic resources to our patients and their families.
Having a chronic illness not only impacts the child with the condition but also the entire family. HopeKids understands this challenge and strives to support these families with the message that hope can be the most powerful medicine of all. HopeKids events provides kids and parents with the opportunity to connect with others in similar situations. That invaluable connection helps families feel as though they’re not alone.
HopeKids provides ongoing events & activities and a powerful, unique support community for children with cancer and other life-threatening medical conditions free of charge for the whole family. With events such as go-cart racing, football clinics with the University of Minnesota Gopher football team, private movie screenings, twins games and not to mention their annual HopeDay festival that, this year, included a petting zoo, BMX biker shows, super heroes, basketball and kickball games, a dunk-tank and inflatable bouncers, there is no shortage of fun or hope for these children, their siblings and parents.
To learn more about the amazing mission of HopeKids watch this video: HopeKids. Restoring Hope. Transforming Lives.
Living with and caring for a medically-fragile child can be exhausting and dealing with the loss of a child is a heartbreaking experience that takes time, strength, support and hope to continue moving forward; for those times when you’re feeling your weakest, there is Faith’s Lodge. Faith’s Lodge provides a retreat where parents and families facing the serious illness or death of a child can retreat to reflect on the past, renew strength for the present, and build hope for the future.
Faith’s Lodge offers families a place to reflect and regroup and hopefully leave with more hope and energy than when they arrived. While at Faith’s Lodge families have the opportunity to spend time and connect with other parents who are in a similar situation, giving you a feeling of support and understanding.
Visit their website to learn more about the amenities and the process for applying to stay at Faith’s Lodge. With a suggested donation of only $25.00 per night, Faith’s Lodge is truly a resource to families when they are in need of a break, a getaway, support from someone who understands their situation or just some time to renew their spirit.
Coming up on September 25th is Hope Rocks, an annual event benefiting Faith’s Lodge. PHS is proud to support Faith’s Lodge as a sponsor for the second year. If you are interested in sponsoring or purchasing tickets to the event please visit the Hope Rocks website.
To learn more about how Faith’s Lodge impacts the lives of those who stay watch this video: Faith’s Lodge. A place where hope grows (warning, it’s a tear-jerker)
Have either of these organizations touched your lives? We’d love to hear your story or see photos from events you’ve attended.