Posts Tagged ‘PHS’

Understanding Infusion: TPN

Friday, April 24th, 2015

When a child is not able to rely on receiving all of their nutrition orally due to all or a part of their digestive system working improperly, total parenteral nutrition (TPN) can be administered intravenously to ensure the body has the nutrients it needs to continue growing. PHS infusion nurses are able to come administer this combination of electrolytes, sugar, lipids and IV fluids from the comfort of a patient’s home, reducing the travel time and stress that comes with needing this infusion regularly.

While there are a number of reasons for needing TPN, a handful of diagnoses commonly requiring TPN include:_T6K9030-2

  • Short bowel disease
  • Malabsorption
  • Hirschsprung disease
  • Ulcerative Colitis
  • Crohn’s Disease
  • Pancreatitis
  • Inflammatory bowel disease

Ultimately, the goal is to wean a patient off TPN if possible as long-term use can lead to liver damage. If a patient is able to be weaned off, it will be managed and planned by health care professionals working directly with the patient’s nutrition care plan.

If you or someone you know is in need of TPN and want it to work around your schedule, call PHS at 651-642-1825 and ask to speak with an infusion nurse.

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Camps for children with medical complexities

Wednesday, April 22nd, 2015

As the weather warms up, you may have started thinking about what you want to fill your family’s summer days with. Maybe you’ve even considered a camp experience for your child with medical complexities. We have two opportunities that might be just the right fit for your family, and now is a great time to start thinking about the possibility as open houses are coming up and registration begins! Read on to see what our clinical social worker, Monica Handlos, recommends and how you can get more information on True Friends and Camp Odayin.

Does your child attend a different camp? We would love to hear about it! (more…)

25 Year All-Stars: Meet Alex & Levi

Friday, April 17th, 2015

In 2015, PHS is excited to be celebrating 25 years of bringing patients home to receive care, where they can be with their families and grow in a comfortable environment. To celebrate the amazing journeys our patients have been on, we’re going to be highlighting their stories each month on the blog through the 25 Year All-Star series.

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The day we met Alex & Levi at college where they are full-time students, we were able to catch them both at their townhome – Levi just returning from class, and Alex enjoying an unusually mellow day free of classes. At 20 and 21 years old, they have settled seamlessly into on-campus living and the independence that comes with it, and show no signs of slowing down. (more…)

25 Year All-Stars: Catching up with Nick

Thursday, April 2nd, 2015

In 2015, PHS is excited to be celebrating 25 years of bringing patients home to receive care, where they can be with their families and grow in a comfortable environment. To celebrate the amazing journeys our patients have been on, we’re going to be highlighting their stories each month on the blog through the 25 Year All-Star series.

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For the last 27 years, Nick has been a number of things. A Twins fan, an animal lover, a Meals on Wheels volunteer. But more than anything else – a trailblazer.  We’ve already told you his story and introduced you to his family and care team, but Nick is without a doubt an all-star, and we were able to catch up with him and his mom recently to see how he’s doing. (more…)

Top tips for travel with kids who have medical accessories

Wednesday, March 25th, 2015

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Traveling with kids can be a big undertaking for any parent – and for parents of children with medical complexities, a trip can mean arranging additional logistics to ensure everything goes as smoothly as possible. Planning is required to arrange additional necessary supplies, flying or driving with multiple pieces of equipment, and always being prepared to handle an emergency – whether you’re on an airplane, in the bathroom at an airport, or at a rest stop along the highway.

But that doesn’t stop Jill from making sure her daughter, Tana, gets to enjoy vacations with the rest of the family. Tana has enjoyed trips ranging from Mexico to the Pacific Northwest and fills her time there with skiing, horseback riding, and relaxation on the beach. (more…)

Understanding Infusion: IVIG/SCIG

Friday, March 20th, 2015

When someone has low levels of immunoglobulin, also known as antibodies, in their blood, they may have an immune disorder and are at a higher risk for developing infection. To improve the functionality of their immune system, immunoglobulin can be administered in two ways: either intravenously (IVIG) or subcutaneously (SCIG). The PHS pharmacy provides the medication Hizentra, and PHS infusion nurses ensure it is administered properly and is effective for the patient.

But what are the differences between IVIG and SCIG?

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Understanding Infusion: Enzyme Replacement Therapy

Friday, March 20th, 2015

Enzymes are crucial molecules in the human body, acting as catalysts to help reactions and assist in break downs throughout certain cells and saliva. But when someone has a Lysosomal Storage Disorder (LSD), their enzymes fail to function properly and they need to receive enzyme replacement therapy (ERT), which is administered through an IV. PHS nurses come to the patient’s home to provide infusions of medication prescribed to address their disorder, allowing life to go uninterrupted. (more…)

Understanding Infusion: Antibiotics

Friday, March 20th, 2015

Although there has been a lot of information about the over-use of antibiotics to treat illnesses, there are many instances where they are essential for treating and healing diagnoses or viruses. When a patient needs antibiotics administered through an IV rather than a pill or ointment, PHS provides that infusion therapy at home – making treatment seamless and allowing patients’ lives to continue uninterrupted while receiving care. Because when it comes down to it, kids deserve to be kids – infection or not. (more…)

Pot o’ gold rainbow craft

Wednesday, March 11th, 2015

We’re seeing green and gold – and rainbows! With St. Patrick’s Day coming up next week, we decided to get in the spirit and found a craft that you can do with your kids that will add a little fun- and color – to your celebration. Most of the supplies can be found in your home, and the steps are all kid-friendly. So follow the directions below, hang it in your house, and your kids can watch for any leprechauns trying to get their pot o’ gold. If your kiddo makes their own, share a picture of it with us on Facebook!

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25 Year All-Stars: Meet Paul

Thursday, March 5th, 2015

In 2015, PHS is excited to be celebrating 25 years of bringing patients home to receive care, where they can be with their families and grow in a comfortable environment. To celebrate the amazing journeys our patients have been on, we’re going to be highlighting their stories each month on the blog through the 25 Year All-Star series.

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In 1991, Paul’s parents were given a grim prognosis for their son – he would have one to three years to live. Having only been in business for two years when Paul came on service shortly after, PHS was committed to helping him grow up at home with his family while receiving the care he needed with respiratory therapy. Now, 24 years later, Paul has not only gone on to surpass all expectations but has done so with a great sense of humor and a love for Thursdays – and today, he is our second All-Star.

“I am one of the original people, after all,” Paul says with a smile. (more…)