Posts Tagged ‘total parenteral nutrition’

Thriving at Home, Thanks to Parenteral Nutrition

Friday, August 8th, 2014

To round out HPN Awareness Week, we want to highlight PHS kiddos who are living at home, with their families, thanks to dietitians, infusion nurses and pharmacists nearby. Parenteral nutrition provides nutrients for individuals who cannot receive them through oral feeding, and in some cases can be the sole method of nutrients. 

Our clinicians provide seamless, comprehensive care to ensure each kiddo they care for stays happy and healthy, and we are happy to see when families are able to enjoy those benefits too. Check out what Elias’ and Emma’s moms had to say about receiving parenteral nutrition at home, and then read on to hear from their PHS dietitians. 

Do you use home parenteral nutrition? Share your stories in the comments! (more…)

What do TPN, SCIG, ERT and ABX have in common?

Tuesday, June 10th, 2014

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Individualized care plans and 24/7 support for each patient are top priorities for everyone at PHS. And that means bringing infusion therapies to you, rather than interrupting your schedule to go to the clinic. Did you know you can get total parenteral nutrition, subcutaneous immunoglobulin (SCIG), intravenous immunoglobulin (IVIG), enzyme replacement therapy (ERT) and antibiotics (ABX) – as well as many more infusion therapies – at home? (more…)

Infusion Pharmacy Grows With Its Patients

Friday, April 25th, 2014

With the number of children with medical complexities in Minnesota increasing significantly over the past 10 years, PHS recently expanded its infusion pharmacy to continue meeting the needs of our patient population.

Improving Efficiencies

New PHS PharmacyEfficiencies in work flow, visibility and utilization of space, and improved communication will be just a few of the benefits this expansion will bring.

“Homecare is playing a larger role in providing for children with medical complexities,” says Jill Liebers, Pharmacy Manager at PHS. “Thanks to our increased pharmacy capabilities and a rise in infusion therapies that can be delivered at home, we will continue to serve this growing patient population at the highest level possible.” (more…)

Max Thrives at Home

Friday, January 24th, 2014
Max at home with a PDNS nurse

Max at home with a PDNS nurse

 

As he runs around, throwing balls and giving kisses to his siblings, one thing is certain – Max is a sweet toddler, thriving at home. But he isn’t the only two year old in this house – Max is one in a quadruplet set, comprised of three boys and a girl.

Two Becomes Four

Initially told she was having twins, it came as a big surprise to mom, Stephanie, and her husband, William, when they later found out she was carrying quadruplets.

Max at 10 days old

Max at 10 days old

“The woman performing the ultrasound started counting and told me I was carrying four, and I told her ‘you better stop looking for babies right now,’” she jokes.

Born at 26 weeks, Max came into the world at 1 pound, 10 ounces – healthy aside from typical micro-preemie issues. However, when he was three weeks old, he developed necrotizing enterocolitis and lost about 90% of his small intestine.

Everyone at Home

With his sibling coming home from the hospital after three, four, and five months, Max was finally able to come home with PHS after seven months.

Max and his siblings finally home together

Max and his siblings finally home together

“It was hard to leave the babies who were home, and it was hard to not be with Max at the hospital. So it was incredible to come home and have everyone together,” remembers Stephanie.

Today, Max receives total parenteral nutrition (TPN), g-tube feedings, and has private duty nursing at home. Because PHS is there to tend to his complex medical needs, Stephanie isn’t playing defense against two-year-olds who want to pull at his cords while also ensuring that Max is getting each of his cares met.

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Peekaboo – Max plays at home

“Max does have quite a few medical needs, and things that have to occur throughout the day to ensure he’s receiving proper nutrition and staying healthy. Having PHS in our home is a crucial part of Max’s care,” says Stephanie.

Their Own Normal

What does a day with four two-year-olds look like? Stephanie seems to have a schedule down pat.

“Everyone gets out of bed around 8, and we have breakfast and play in the morning. Max has occupational therapy once a week and physical therapy twice a week, so we have a few trips out.

Snacktime with the kiddos

Snacktime with the kiddos

“If the weather’s nice, we go for walks, if we have enough people with us, we go to the park to swing and slide. Max loves to go down the slide. Otherwise, we play in the house. Have lunch, nap, play some more, eat dinner, and go to bed.”

Looking to the Future

Max and his family are looking ahead at what’s to come, hoping that eventually he’ll be TPN-free and lose all the tubes.

“He came home from the hospital on 24 hours of TPN, and he’s down to 12 now. We’ll just go with what he can handle,” says Stephanie. “We don’t want to treat him any differently; we want him to be able to live a normal life. We don’t want to tell him what he can and can’t do with his future.”

Gardners_27 months

For right now, Max spends his time being the observer of the house and using his fine motor skills more to do things like putting items in his piggy bank, while Stephanie and William spend their time raising four two-year-olds.

“And trying to get some sleep,” laughs Stephanie.

Home Parenteral Nutrition (HPN) Awareness Week August 5-11

Friday, August 3rd, 2012

August 5–11 is  Home Parenteral Nutrition (HPN) Awareness Week. With the goal of demystifying HPN and helping others better understand what HPN patients go though on a daily basis, the Oley Foundation has come up with plenty of ways you can get involved throughout the week and we’d like to share some of them with you!

The awareness we are able to spread as a group over the week will be largely up to you! You are the heart of the effort, and your experiences are key in creating understanding and hope in others. Contact your local media, post your story on the PHS Facebook page, upload a YouTube video, or send us your story via email (dmakerson@pediatrichomeservice.com) so we can post it in our blog and share with all the PHS followers—the more we all work together to spread the word, the larger an impact we can have.

Be sure to use HPN Awareness Week logo as Facebook profile photo; and join in on any discussions!

  • Sunday, Awareness:
    • explain what home parenteral nutrition is and how it has helped you. Tell your family, friends and co-workers
    • distribute and wear HPN Awareness Week buttons (available through Oley)
    • post on Web sites, blogs
  • Monday, Outreach:
    • share Oley materials with someone with a similar diagnosis
  • Tuesday, Advocacy:
    • send letters to elected officials; write to local media (samples at oley.org)
    • write a letter to the editor
  • Wednesday, Education:
    • how to travel with HPN, share some facts about HPN and/or Oley, etc.
    • write a letter to the editor
  • Thursday, Networking:
    • explain how knowing others on HPN has helped you, introduce Oley (and RCs), how to connect to others
    • share information packets with doctors, other organizations, etc. (available through Oley)
    • Third item of embedded list
  • Friday, Understanding:
    • address misconceptions (HPN can be administered at home, can help one feel stronger, etc.)
    • letter to editor
    • talk to family, friends, co-workers
  • Saturday, Awareness:
    • share a positive experience you have experienced because of HPN, and what made it positive
    • post on Inspire forum, Oley FB page

Download an HPN Awareness Week poster to display at your home or work as a way to start a conversation!

Tweet, twitter, and post—and get others involved.

Please use the HPN Awareness Week logo whenever it’s appropriate. It will be great if everyone could use it as a Facebook profile photos August 5–11! Use it on your blogs and e-mails.

If you have Facebook, Twitter, etc., please share this message with fellow HPNers.

Create excitement for the week of August 5!

Joe’Von Thrives at Home

Friday, January 13th, 2012

Joe’Von is like most kids his age
And that’s what makes him remarkable.
He likes to watch cartoons, play in the yard and pick on his twin sister. In that much, at least, he’s a fairly typical preschooler. You wouldn’t have imagined it, though, had you met him the day he was born.

Joe’Von came into this world at 28 weeks and with short bowel syndrome, which means he didn’t have enough intestinal length to properly absorb nutrients. Doctors believed he’d never eat like the rest of us. In other words, that he wouldn’t be able to sustain himself with food.

Couldn’t eat or even look at pictures of food
Joe’Von’s aversion to eating kept him not only from the kitchen table, but also from being able to watch people eating on television or looking at photos of food in magazines. It also meant TPN and g-tube feeding directly into of his stomach. Long term, that could mean liver failure.

Out of the hospital so he can grow up at home
PHS private-duty nurses, infusion therapists, dietitians and other highly trained in-home caregivers have given Joe’Von the opportunity to thrive where’s he’s most comfortable—at home.

So far, he’s doing great. With PHS nursing care 12 hours a day, six days a week, Joe’Von is slowly being weaned off TPN. He’s learned to walk, run and play, and even dances and does karate. He’s gaining weight and beginning to experiment with food—putting grapes in his mouth, though not yet eating them. It is hoped, however, that he’ll eat on his own someday and grow up like any other kid.

PHS is excited to have just wrapped up our newest TV commercial too, check it out! It’s so important for families to know they have a choice in their homecare company and PHS is always here to help bring your child home and keep them home. Given the choice, kids will always choose to thrive, and PHS makes that possible.

Have you seen the TV commercial air yet? What do you think?