August 5–11 is Home Parenteral Nutrition (HPN) Awareness Week. With the goal of demystifying HPN and helping others better understand what HPN patients go though on a daily basis, the Oley Foundation has come up with plenty of ways you can get involved throughout the week and we’d like to share some of them with you!
The awareness we are able to spread as a group over the week will be largely up to you! You are the heart of the effort, and your experiences are key in creating understanding and hope in others. Contact your local media, post your story on the PHS Facebook page, upload a YouTube video, or send us your story via email (dmakerson@pediatrichomeservice.com) so we can post it in our blog and share with all the PHS followers—the more we all work together to spread the word, the larger an impact we can have.
Be sure to use HPN Awareness Week logo as Facebook profile photo; and join in on any discussions!
- Sunday, Awareness:
- explain what home parenteral nutrition is and how it has helped you. Tell your family, friends and co-workers
- distribute and wear HPN Awareness Week buttons (available through Oley)
- post on Web sites, blogs
- Monday, Outreach:
- share Oley materials with someone with a similar diagnosis
- Tuesday, Advocacy:
- send letters to elected officials; write to local media (samples at oley.org)
- write a letter to the editor
- Wednesday, Education:
- how to travel with HPN, share some facts about HPN and/or Oley, etc.
- write a letter to the editor
- Thursday, Networking:
- explain how knowing others on HPN has helped you, introduce Oley (and RCs), how to connect to others
- share information packets with doctors, other organizations, etc. (available through Oley)
- Third item of embedded list
- Friday, Understanding:
- address misconceptions (HPN can be administered at home, can help one feel stronger, etc.)
- letter to editor
- talk to family, friends, co-workers
- Saturday, Awareness:
- share a positive experience you have experienced because of HPN, and what made it positive
- post on Inspire forum, Oley FB page
Tweet, twitter, and post—and get others involved.
Please use the HPN Awareness Week logo whenever it’s appropriate. It will be great if everyone could use it as a Facebook profile photos August 5–11! Use it on your blogs and e-mails.
If you have Facebook, Twitter, etc., please share this message with fellow HPNers.
Create excitement for the week of August 5!
