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HomeCommunity Resources

Community Resources

Respiratory

• Aaron's Tracheostomy Site
  A parent-created site specifically for tracheostomy patients.

Asthma

• Allergy and Asthma Network, Mothers of Asthmatics
  This is a great site for the most current information regarding asthma and allergies.
• American Academy of Allergy, Asthma and Immunology
• American Lung Association
• Asthma and Allergy Foundation of America
• Center for Disease Control and Prevention
• Food Allergy Network

Infusion

• Center for Disease Control and Prevention Diseases Index
• Mayo Clinic Diseases and Conditions
• The Oley Foundation

Nutrition

• Mealtime Notions
  Information for patients/families interested in Home Blenderized Formula. A book resource is also available for purchase through this website titled Homemade Blended Formula Handbook.
• PHS Formula Resource Packet

Family and Fun

• Faith's Lodge
  Faith’s Lodge is a retreat for families coping with the serious illness or death of a child.
• Hope Kids
  HopeKids provides ongoing events & activities and a powerful, unique support community for children with cancer and other life-threatening medical conditions.
• PACER
  A Twin Cities resource group for people with disabilities and their families.
• Our-Kids
  A parent-created resource site for caregivers of children with disabilities.
• Spare Key
  Spare Key provides financial assistance by paying one month’s mortgage for families with a child in the hospital.
• Summer Camps for Medically-Fragile Kids
  
• West Metro Miracle League
  A Minnetonka based non-profit organization; West Metro Miracle gives children with challenges the chance to play baseball.

General Information

• American Academy of Pediatrics
• Center for Disease Control and Prevention Diseases Index
• Child seat safety occupant identity program
• Children's Hospital Medical Center of Cincinnati
  This is a great site to find patient and family educational materials related to homecare.
• HealthCare.gov
  Information to help navigate the health care market. Provides resources such as a quality care comparison tool, help with insurance, understanding the law and much more.
• Hennepin County Human Services and Public Health Resource Directory
• Mayo Clinic Diseases and Conditions
• Minnesota Department of Health
• MinnesotaHelp.info
  Resource database offering information on a wide range of community services, including senior services.
• Patient Interpretation Rights
  Right to Receive Interpretation
• Prince's Sensory Delights
  Apparel designed especially for infants and children with special needs. Prince's Sensory Delights and Kozie Clothes was founded by a Sensory Certified Occupational Therapist as a way to incorporate Neuroscience Principles into adorable, high quality , relevant, non-stigmatizing apparel for children with special medical, sensory, and dressing needs.
• Speak Up
  Your child's health and safety are important to doctors, nurses, and other caregivers. You can make a difference in your child's care by asking the right questions and being actively involved. This brochure has tips and answers to questions to prevent errors in your child's care.
• WebMD
• ZixMail Secure Email – Quick Reference

Travel Equipment and Oxygen

• Advanced Aeromedical
  Provides oxygen for airport layovers, hotel stays, cruise ships, and motor tours.
• Breathin Easy
  Provides location of providers of oxygen for travelers.
• Freedom Link by Van G. Miller & Associates (VGM) 800-642-6065 (Toll-free)
  A fee based service that will coordinate the provision of oxygen and other medical equipment.
• Medical Travel, Inc.
  A full service medical travel agency.
• Special Needs Group
  Provider of special needs mobility equipment and oxygen in the travel industry; provides support to more than 55 cities and ports in more than 20 countries.
• Traveling with Oxygen and Medical Equipment Aviation Consumer Protection Division, United States Department of Transportation
  Provides updates for airline travel by passengers needing medical oxygen.

Assistance Programs

• Cystic Fibrosis Foundation
• MinnesotaHelp.info
  Resource database offering information on a wide range of community services, including senior services.

Minnesota Home Care Bill of Rights

• English Version (pdf)
• Hmong Version (pdf)
• Somali Version (pdf)
• Spanish Version (pdf)