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Books On Children With Medical Complexities For Your Family

Books can be a great resource for educating not only yourself but other family and friends on the diagnosis or therapies of your medically-complex child, and also serve an important role in ensuring your child sees books and pictures featuring kids just like them.

Sometimes, finding these resources is half the battle – so we’ve made it simple and listed them out for you. These books can be found for order online, and have been recommended by parents and health care professionals as ways to educate yourself, your children, or anyone else who plays an important role in your family’s life.

Comment on this post with your favorite book for medically-complex kiddos, and we’ll send you a copy of The Rosie Summer (listed below)!

From Our Facebook Community

  • If I Get to Five – Fred Epstein
  • Susan Laughs – Jeanne Willis
  • Being Me – Julie Broski
  • A Difference in the Family – Helen Featherstone

From a PHS Dietitian

  • Book_coverThe Rosie Summer – Tracey Cooke – An illustrated storybook to help children who face tube feeding, those currently tube fed, or kids whose sister or brother face this challenge.
        • Leave a comment with your favorite book for medically-complex kiddos on our blog and we’ll send you a copy of this tubey book
        • You can also read it online here (created by Nestle)
  • Tube Feeding at Home – Designed to help your child enjoy fun activities while learning about tube feeding (created by Abbott)

My Tubey Books

Children’s books for tube fed kids by Rhiannon Meritt-Rubadue – at

  • There’s More Than One Way to Eat! A My Tubey Book
  • My Tubey: A Day in the Life of a Tube Fed Boy
  • My Tubey: A Day in the Life of a Tube Fed Girl
Originally published: January 24, 2014
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