Muscular Dystrophies

Jordan

PHS Home Care for Patients With Muscular Dystrophies

Pediatric home care is what we do. For more than two decades, PHS has provided compassionate, comprehensive, specialized, high quality in-home care to pediatric patients, no matter what their medical challenges.

A multidisciplinary PHS team collaborates to do everything possible to help our patients with muscular dystrophy live life to the fullest – at home.

  • Close follow up by specialty providers is recommended to manage muscular dystrophy. By maintaining relationships with area hospitals and specialty providers, PHS stays current with new treatments, medications, and nutrition plans to best care for pediatric patients at home.
  • PHS collaborates with hospitals and other in-home services to develop a comprehensive plan of care specific to the needs of each patient.
  • In addition to the therapy provided by community occupational and physical therapists, PHS respiratory therapistsinfusion nurses, and/or home care nursesdietitians and pharmacists who understand the special needs of children play an active role in supporting MD patients.
  • PHS home care nurses provide scheduled visits or round-the-clock care.
  • PHS provides 24/7 on-call assistance to families receiving our service.
  • A PHS clinical social worker is available to help the family deal with the many issues and concerns that arise with a muscular dystrophy diagnosis and provide support in locating additional information, programs, services and community resources specific to a muscular dystrophy diagnosis.
  • The PHS medical director attends team care rounds and presents medical updates and new treatment modalities in caring for patients with muscular dystrophy.
  • PHS provides medical equipment and supplies needed by a patient with MD.

Meet PHS Patient Jordan

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About Muscular Dystrophy

Muscular dystrophy is an inherited condition of progressive muscle weakness in both children and adults. There are many different types of muscular dystrophy. Depending on the type, all muscles or specific groups of muscles can be involved. When heart and lung muscles are affected, irregular heart rhythms and difficulty breathing can result. Progressive muscle weakness affects the ability to swallow and nutritional needs can be compromised. There is no cure for muscular dystrophy.

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