Blog
Pompe Disease: What It Is and How It’s Managed with Infusion Therapy
Throughout the month of April, we’re diving deeper into conditions managed with enzyme replacement therapy (ERT) and information about the medication itself (watch for a video with our pharmacist...
Newborn Screening Additions in MN Offer Earlier Intervention
Soon after birth, newborns in Minnesota are tested for 60 disorders that they may be at risk for. These are often rare or hidden disorders, and early detection can...
Enzyme Replacement Therapy Gives Joe a Lifetime of Opportunity
As one of only a few kids in Minnesota with Morquio A syndrome, Joe is already a unique 12 year old. But what makes Joe such a special boy goes...
Enzyme Replacement Therapy: A Novel Intervention for Rare Diseases
Roy C. Maynard, M.D., is the Medical Director for PHS. He serves as PHS’s clinical leader, working with the team to provide consultation and advice to ensure quality and...
The Ins and Outs of Receiving Home IV Therapy From Your Infusion Nurse
When your child is starting home infusion therapy, there can be a lot of unknowns surrounding your nurse’s visit, what needs to be done before or after, and what...
Home Infusion Possible for Two Siblings Thanks to Interpreter Services
Every Tuesday, PHS infusion nurses Doreen and Ashley make a home visit to 4 year old Andrea and 8 year old Gerson for enzyme replacement therapy and are met...
Understanding Infusion: Enzyme Replacement Therapy
Enzymes are crucial molecules in the human body, acting as catalysts to help reactions and assist in break downs throughout certain cells and saliva. But when someone has a...