Diagnosis: Short bowel syndrome (SBS), esophageal reflux, noncompaction cardiomyopathy
Services used: Infusion nursing and pharmacy, home care nursing, specialized nutrition
Born at 23 weeks, Joe’Von couldn’t absorb nutrients and had a very strong aversion to food. Doctors believed he’d never be able to sustain himself.
Joe’Von is gaining weight, growing, and experimenting with food by putting grapes in his mouth, though he’s not yet eating them. With the progress he’s making, it’s expected he will eventually eat on his own, and grow up like any other kid.