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eHealthRecords for Immune Deficiency Diseases

Do you feel like you’re constantly trying to organize your kiddo’s medical information? Doctor visits, health concerns and medication details for a kiddo with immune deficiency disease, among other diagnoses, can gather quickly. Fortunately, the Immune Deficiency Foundation has created eHealthRecord – a tool to help you organize and manage all the information you need in one place, and accessible anywhere there’s an internet connection.




This record keeping system, designed specifically for patients with immunodeficiency diseases, “helps you track diagnosis, infections, symptoms and treatments; scan and save important documents; log doctor’s visits and medications; create an In Case of Emergency Report; and share, print and export your records.” It’s truly an ‘everything in one spot’ tool for the parent of a kid  – or the patient themselves.

Creating an account is easy – visit the sign in page and click ‘Create My Account’ under ‘I am a New User’ – you’ll be directed through the steps from there!

If your kiddo doesn’t have an immunodeficiency disease, have you found a tool similar to this for their diagnosis? We’d love to pass along these resources for other medical conditions as well.  

Originally published: January 17, 2014

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