Meet Joe’Von
Born premature and unable to absorb nutrients, Joe’Von now has an appetite for life.
Resources
General Information
- Child Safety Seat Occupant Identification Program
- Minnesota Home Care Bill of Rights – English (PDF)
- Minnesota Home Care Bill of Rights – Hmong (PDF)
- Minnesota Home Care Bill of Rights – Somali (PDF)
- Minnesota Home Care Bill of Rights – Spanish (PDF)
- MinnesotaHelp.info
Resource database offering information on a wide range of community services, including pediatric services.
- Got Transition
Resources to improve transition from pediatric to adult health care through the use of new and innovative strategies for health professionals and youth and families.
Adaptive Clothing/Accessories
- Care + Wear
By incorporating fashion and innovation into healthwear solutions, Care + Wear strives to improve patient comfort and satisfaction, while streamlining the treatment process for clinicians.
- Kozie Clothes
Adorable, high quality, non-stigmatizing apparel designed especially for infants and children with special medical, sensory and dressing needs.
- Medi-Monsters
Free comforting security “monsters” to help chronically ill children and children fighting cancer.
- Care A Line
Sleeves and wraps to hold IV lines in place while still allowing access to them for infusions.
- Firefly Friends
A range of products are inspired by ‘special needs family participation’, for kids with special needs aged 1-14 years.
- HELP Belt
Customize your own HELP Belt seatbelt to say what you need to relay in the event of an emergency
Assistance
- Angel Foundation
Financial assistance, education and support for families on a cancer journey.
- Blair’s Tree of Hope
Help for families of children who have been hospitalized with a life threatening illness due to pediatric cancer, pediatric bone marrow transplant or pediatric blood disorder.
- Colleges Online
Though the price of obtaining a postsecondary education can be steep, a college degree should be accessible to everyone. To offset costs, many seek alternative sources of funding, including grants, loans and scholarships. Students with disabilities who are entering college will find that there are selective scholarship opportunities for which they may apply that can help pay for school.
- Eden’s Garden
Support and resources to local NICUs and families going through a similar journey.
- Fiona’s Hope Totes
Tote bag care packages that inspire hope and provide families with the comfort of home.
- Fund It Forward
Financial assistance for families in need of medical or adaptive equipment for their children.
- Go Grad
Scholarships, support resources and expert insight for achieving an advanced degree for students with disabilities.
- MonkeyGeek
A guide on how to get scholarships and grants for students with disabilities.
- MonkeyGeek
Resources and funding strategies for making homes accessible.
- Open Arms of Minnesota
Nonprofit organization in Minnesota that cooks and delivers free meals tailored to meet the nutrition needs of individuals living with cancer, HIV/AIDS, MS, and ALS.
- The Parker Lee Project
Resources for families with medically dependent and special needs children, and help in obtaining medical supplies, equipment, education and emotional and financial support.
- Pinky Swear
Basic needs support and unique family programs for children with cancer and their families.
- Spare Key
Provides financial assistance by paying one month’s mortgage for families with a child in the hospital.
- United Healthcare Children’s Foundation
Provides medical grants to help children gain access to health-related services not covered, or not fully covered, by their parents’ commercial health insurance plan.
College Education
- Affordable Colleges Online
With the advances of adaptive technologies and trend toward progressive legislation, prospective college students with disabilities now have countless resources available to make their transition to postsecondary education less stressful. Above, find specific information and resources on a variety of different disabilities, learn how to make the transition into the workforce easier, and find out what your legal rights on campus are.
Disease Specific
- American Cancer Society
Resources to help people stay and get well, find cures and fight back against cancer.
- Be The Match
Manages the largest and most diverse marrow registry in the world; operated by National Marrow Donor Program.
- Cancer-Clinical Trials
Information about National Cancer Institute trials, programs and initiatives.
- Cerebral Palsy Group
Cerebral Palsy Group is an online resource for anyone who has been affected by cerebral palsy, brain injuries, or birth injuries.
- Cerebral Palsy Guide
Cerebral Palsy Guide proposes focused solutions and resources for families and children affected by Cerebral Palsy across the United States and abroad.
- Cerebral Palsy Guidance
Cerebral Palsy Guidance was created to provide answers and assistance to parents of a child with cerebral palsy. Our goal is to reach as many members of the cerebral palsy community as possible, building up a network of support, as well as providing necessary assistance.
- Children’s Cancer Research Fund
Information for parents about survivorship, research and cures, along with opportunity to contribute.
- CureSearch for Children’s Cancer
Leader in funding children’s cancer research to accelerate a cure.
- Cystic Fibrosis Foundation
Resources, support and advocacy to cure cystic fibrosis and help people with the disease lead full lives.
- Cystic Life
Information and educational videos, reading materials and links for the cystic fibrosis community.
- Lasting Imprint
Nonprofit committed to fighting congenital heart defects and creating supportive community through education, research and assistance.
- Leukemia & Lymphoma Society
Voluntary nonprofit organization that provides education and patient services and funding blood cancer research.
- Monkey in My Chair
Beneficial program to help cancer patients stay connected to their classmates.
- Muscular Dystrophy Association
Support, advocacy and resources from the world’s leading nonprofit dedicated to finding treatments and cures for MD, ALS and other neuromuscular diseases.
- MN Spina Bifida Association
Voluntary nonprofit to increase spina bifida awareness and enhance lives of those affected.
- National Cancer Institute
Website designed to help patients learn about different forms of cancer and research for cancer treatment.
- Parents for Heart
Mutual support and education for parents of children with cardiovascular disease.
- Pediatric Oncology Resource Center
Resources for parents, friends and families of children who have or had childhood cancer.
- ZocDoc
Online site where you can find oncology doctors in your insurance network, book appointments and read doctor reviews.
Fun/Sports/Camps
- Camp Erin
Network of free bereavement camps for children and teens grieving a significant loss.
- Camp Odayin
Fun, safe and supporting experiences and community building for young people with heart disease and their families.
- Hope Kids
Hope Kids provides ongoing events and activities and a powerful, unique support community for children with cancer and other life-threatening medical conditions.
- iCAN hoop
Gives children with disabilities the opportunity to play basketball.
- Joshua’s Camp
Provides camp experience for doctor-referred families who have a child being treated for cancer.
- Miracle League
Charitable organization that gives children with challenges the chance to play baseball -a national organization with multiple chapters throughout Minnesota.
- SuperSibs
Tools to help siblings and resources for parents during and after their family’s battle against childhood cancer.
- True Friends
Camp experiences for children and adults with disabilities.
- Youth Rally
Five-night camp for kids and teens living with conditions of bowel and/or bladder.
- LifeStriders
Provides life-enhancing, physical and psychological experiences and services to individuals with special needs through Equine-Assisted Therapy.
- Koos for Kids
Organizes baseball league where children with special needs can be part of a team and learn baseball.
- Miracle League Milwaukee
Charitable organization that gives children with challenges the chance to play baseball.
- Team Up! With Families
Provides a typical day camp experience for children with special needs in an active outdoor environment.
- Zachariah's Acres
A place where kids with special needs and their families can enjoy nature and experience the outdoors
- Adaptive Sports Equipment
Find adaptive equipment for various sports for sale.
Nutrition/Feeding
- Mealtime Notions
Information for patients/families interested in Home Blenderized Formula. A book resource is also available for purchase through this website titled Homemade Blended Formula Handbook.
- The Oley Foundation
Education, outreach and networking resource for those requiring home intravenous and tube feeding.
- Tubie Friends
Parent-created, nonprofit site features stuffed friends with medical equipment that educate, comfort and take the fear out of feeding tubes.
- Tubesies Feeding Tube Friendly Bodysuit
Tubesie is a Feeding Tube friendly bodysuit designed to allow clean and easy access to a child’s G-tube.
Respiratory
- Aaron’s Tracheostomy Site
Parent-created site specifically for tracheostomy patients.
Support
- Crescent Cove
Hospice/respite care and support in family-focused environment for children and young adults with shortened life expectancy, and their families.
- Cystic Life
Information and educational videos, reading materials and links for the cystic fibrosis community.
- Family Voices
Minnesota resource for the latest information on what is happening in health care and how it affects you and your family.
- Faith’s Lodge
Retreat for families coping with the serious illness or death of a child.
- Gilda’s Club
Clubhouses providing social, emotional and psychological support for those living with cancer.
- Interfaith Outreach & Community Partners
Programs that provide direct assistance and connect people with opportunities and resources.
- KidsCan Minnesota
Created by and providing support for families touched by childhood cancer.
- Momcology Facebook
Medical-social support network and information center for mothers and primary caregivers of children with cancer.
- Mommies of Miracles
World’s largest virtual support group for mothers of children with medical complexities, life-limiting conditions or developmental disabilities.
- PACER Center
Twin Cities resource group for people with disabilities and their families.
- Parents for Heart
Mutual support and education for parents of children with cardiovascular disease.
- Prenatal Partners for Life
Support and resources for coping with an adverse prenatal diagnosis and raising a child with special needs.
- Ronald McDonald House Upper Midwest
Provides home away from home to keep families together during a child’s health crisis.
- Second Chance for Life Foundation
The Second Chance for Life Foundation is a heart transplant/LVAD/mechanical heart support group.
- Songs of Love
Free, personalized, uplifting songs for children and teens facing tough medical, physical or emotional challenges.
- Speak Up (PDF)
Brochure with tips and answers to questions to help you ask the right questions and be actively involved in your child’s care.
- The Truth 365
Award-winning documentary film and social media campaign that gives a voice to all children fighting cancer.
- Ronald McDonald House Charities Eastern Wisconsin
Provides home away from home to keep families together during a child’s health crisis.
- Variety Children's Charity of Wisconsin
Providing life-enriching assistance to Wisconsin children challenged by physical disabilities.
- Help Me Grow
Free services and support to help eligible MN children learn and grow.
- Keeping Your Home Through a Debilitating Disease
Resource guide to give people with chronic and debilitating diseases information to help them keep their homes as they seek and receive treatment.
Traveling with Equipment and Oxygen
- Advanced Aeromedical
Provides oxygen for airport layovers, hotel stays, cruise ships and motor tours.
- Angel Flight Central
Arranges charitable flights for health care or other humanitarian purposes.
- Breathin Easy
Provides location of providers of oxygen for travelers.
- Medical Travel, Inc.
A full service medical travel agency.
- Miracle Flights for Kids
Helps fly children with cancers and other debilitating diseases to specialized treatment centers across the U.S.
- Special Needs Group
Provider of special needs mobility equipment and oxygen in the travel industry; provides support to more than 135 cities in over 30 countries.
Wishes
- Dream Factory
Grants dreams to critically and chronically ill children from ages three through eighteen.
- Hunt of a Lifetime
Arranges and pays for dream hunting and fishing for boys and girls with a life-threatening illness.
- Make a Wish MN
Grants wishes of children with life-threatening medical conditions.
- Shot for Hope
Family-oriented outdoor sports activities for children with a life-threatening illness or life-altering disease and their families.
- Special Spaces
Creates dream bedrooms for children with life-threatening illnesses.
- Sunshine Foundation
Makes dreams come true for children of income-limited families living with a chronic illness, physical challenge or suffering from trauma of abuse.
- United Special Sportsman Alliance, Inc., (USSA)
Wish-granting charity specializing in sending critically ill and disabled youth and disabled veterans on a dream outdoor adventure.
- Wishes & More
MN-based charity that enhances lives of children with terminal and life-threatening illnesses by providing wishes, scholarships, memorials and more.
Other
- Icing Smiles
Provides custom celebration cakes and other treats to families impacted by the critical illness of a child.
- S-CAPEPOD Evacuation Cocoon
The S-CAPEPOD Evac Cocoon is a simple-to-deploy evacuation device which when required can be unfolded and fitted around the person laid on the bed.